Dementia: Helping Children And Teens Adjust (Video)

This video from Alzheimer Society of British Columbia has some great tips for talking
to teens and children about dementia and the effects it may have on the adults around
them. Something parents may not consider is how aware teens and children are of the
emotions of others around them; they know when things are different or people are
upset about something. They may not need a full complex explaination, but they should
be informed that there is a reason for changes in the behavior of a loved one.
Children and teens also need to be informed how to deal with those changes and where
to get help coping or adjusting to their new role with a family member who has
dementia.

Below is the list of topics covered in the video:

  • How children and teens may be feeling
  • Ways to help thme cop
  • Communication tips they can use
  • How to involve them with the person with dementia
  • Som activities they can do with the person with dementia
  • Signs that they may be having difficulties coping

As a parent or adult in the life of the child, one of the best things you can do is
to be honest and give an age appropriate description of what is happening. Give an
answer to all questions; if you can not answer something, let the child be a part of
finding an answer and looking into it. Likewise, allow some time to just talk without
immediately having to solve all their problems. Be careful not to give them too much
responsibility; let them help in ways that are age appropriate and not overwhelming.
Also, educate the child on ways to communicate better with a loved one who has
dementia. Tell the child about specific ways to help their loved one and spend time together.

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10 Facts About Dementia Worldwide

Dementia is a worldwide epidemic. We mostly talk about dementia in relation to the U.S., but it is indeed a global concern. The World Health Organization (WHO) has compiled a number of statistics and facts related to dementia’s effect on people and their families, as well as its economic impact. The WHO is an organization responsible for directing and coordinating health resources and activities for the United Nations. A list of WHO dementia facts can be found below.

10 Dementia Facts from the WHO

  • Dementia is not a normal part of ageing
  • 35.6 million people live with dementia
  • A new case of dementia is diagnosed every 4 seconds
  • Huge economic impact; US$ 604 billion per year
  • Caregivers of dementia patients experience high strain
  • Early diagnosis improves the quality of life of people with dementia and their families
  • People with dementia and their families are often discriminated against
  • Awareness and advocacy are needed
  • More research and evaluation is required
  • Dementia is a public health priority

(Source: WHO.int)

You can learn more about the World Health Organization at www.who.int. To view a slideshow with more information related to these 10 facts, visit www.who.int/features/factfiles/dementia/en/.

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Resources and Information about LBD: The Lewey Body Dementia Association, Inc.

The Lewey Body Dementia Association, Inc. is an organization focusing on support and resources for those with Lewy Bodey Demantia (LBD), their families and caretakers. Lewy body dementia is a degenerative dementia that has similar characteristics to Alzheimer’s and Parkinson’s diseases. After Alzheimer’s, LBD is second in the number of sufferers worldwide. Lewy Body Dementia can be difficult to diagnose, since symptoms are so similar to other diseases. LBD symptoms include changes in awareness and concentration, motor skill problems and visual hallucinations or delusions.

Information from the The Lewy Body Dementia Association shared on their About Us page includes the following:

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.

Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.

Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias.

History

LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.

(Source: lbda.org)

To learn more about the Lewy Body Dementia Association, Inc., you can visit their website at http://lbda.org. They have a wealth of information about LBD as well as support resources, connections to others in the LBD community and information for medical professionals.

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Overview of Dementia in 101 Seconds (Video)

The video titled “Dementia 101 in 101 Seconds” by Alzheimer’s Weekly gives a quick overview of dementia and causes of the disease. Alzheimer’s Disease, Huntington’s Disease, Lewy Body Dementia and traumatic brain injury are just a few conditions mentioned that result in loss of cognitive function. The video briefly covers causes, symptoms and types of dementia.

This colorful and attention-grabbing video covers the basics of dementia and related conditions in less than two minutes. The video is a good place to start for someone that wants to get a simple, visual explanation of dementia.

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4 Stories of Living With Dementia (Video)

This video from the Social Care Institute for Excellence shares the stories of four people with dementia. The individuals were interviewed over time as their dementia symptoms progressed. Barry has had dementia for fifteen years and still has much of his ability to express himself and communicate. Olive has lived in an assisted care home for two years; she thinks dementia is awful because you hurt the ones you love most.

Bob has been getting full time care for two years; he suffers from hallucinations and mistaken beliefs. Judy has had dementia for eleven years; she suffers from more progressed symptoms affecting visual perception and increased instances of disorientation. Her daughter is very attentive to her needs and understands her when she can not get out all the words to express herself.

In the video, Barry shared that he never thought dementia would progress and take memories and abilities from him so quickly. When asked if she felt dementia takes a person’s identity, Judy responded that it isn’t and she is the same. Toward the end of the video, Olive expressed her joy at hugs from family and their understanding attitudes.Bob and his wife agree that they still share a friendship and care for each other. They are working through the dementia together.

Families, friends and professional carers are very important sources of support for those with dementia. Every case of dementia is not exactly the same. Some people continue to be high functioning for years like Bob, but others need full time care for hallucinations like Bob. Ultimately, people with dementia are still people that want and need love and care.

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Do You Know the 10 Warning Signs of Alzheimer’s Disease?

Do You Know the 10 Warning Signs of Alzheimer’s Disease?

Alzheimer’s disease is a devastating disease; memories, perception and vital organ functions are all impaired. Alzheimer’s seems to show up all at once in many cases, but the damage has occurred over a long period of time.Many things can be done to manage the disease and help a person adapt, if Alzheimer’s is identified in the early stages. Below are the 10 signs of  Alzheimer’s.

Early signs of Alzheimer’s disease include:

1. Memory loss that disrupts daily life.
2. challenges in plannign or solving problems
3. Difficulty completing familiar tasks at home, at work or at leisure.
4. Confusion with time or place
5. Trouble understanding visual images and spatial relationships.
6. New problems with words in speaking or writing
7. Misplacing things and losing the ability to retrace steps.
8. Decreased or poor judgment.
9. Withdrawal from work or social activities.
10. Changes in mood and personality.

Source (Alz.org)

For additional information on the 10 signs of Alsheimer’s, read the brochure “Know the 10 Signs” by the Alzheimer’s Association. Visit http://www.alz.org/national/documents/checklist_10signs.pdf to learn more.

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November 2014 – Alzheimer’s Awarness Month and Caregivers Month

Mark your calendars! National Alzheimer’s Disease Awareness Month and National Caregiver Month will be here soon. November is the month set aside for national awareness of Alzheimer’s disease and to show special appreciation for family and caretakers of those with Alzheimer’s.

Add a personal tribute in honor of a caregiver at http://www.alz.org/care/honor-caregiver.asp.

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Brochure Resource – How to Create a Forget Me Not Booklet with Person Who Has Dementia

As dementia progresses, a person has more and more difficulty remembering  events from the past. Ability to recall recent events and communicate also diminishes over time. The Alzheimer Society of Canada has a brochure titled “All About Me Booklet” for caregivers and those with dementia. Use this brochure to create a memory book a person with dementia can reference to remember favorite events, hobbies and activities from daily life.

The booklet has sections to collect details about preferences, medical history/medicines and connections to family and friends. There are also journal pages for a caregiver to record his or her thoughts or keep track of daily interactions with his or her loved one who has dementia.

Click here to download the brochure.

 

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3 Ways Caregivers Can Care for Themselves (Video)

Caregivers often get so caught up in caring for others that they do not take care of themselves as they should. Below are three tips caregivers should implement to improve their health.

Three great tips for better caregiver health include:

  • Get exercise
  • Get screened, especially women (mammogram and colonoscopy)
  • Focus on nutrition

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Wish-TV and Guests Share Alzheimer’s Information and Tips (Video)

Wish-TV shares a video about Alzheimer’s, helping loved ones with Alzheimer’s and resources available to caregivers. It also has some good tips on dealing with personality changes in loved ones and ways to ask about pain level or other needs.

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