Resources and Information about LBD: The Lewey Body Dementia Association, Inc.

The Lewey Body Dementia Association, Inc. is an organization focusing on support and resources for those with Lewy Bodey Demantia (LBD), their families and caretakers. Lewy body dementia is a degenerative dementia that has similar characteristics to Alzheimer’s and Parkinson’s diseases. After Alzheimer’s, LBD is second in the number of sufferers worldwide. Lewy Body Dementia can be difficult to diagnose, since symptoms are so similar to other diseases. LBD symptoms include changes in awareness and concentration, motor skill problems and visual hallucinations or delusions.

Information from the The Lewy Body Dementia Association shared on their About Us page includes the following:

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.

Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.

Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias.


LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.


To learn more about the Lewy Body Dementia Association, Inc., you can visit their website at They have a wealth of information about LBD as well as support resources, connections to others in the LBD community and information for medical professionals.

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